- In memory of Blandina Khondowe
- Barbara Brenner Breast Cancer Activist Scholarship
- Remembering Barbara
- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
Ways to Look at Illness
Category Archives: Breast Cancer
The Legislature and Breast Cancer: Not a Good Match
The Legislature and Breast Cancer: Not a Good Match According to California law, starting on April 1, 2013 (I note that that was April Fool’s Day), women whose mammograms revealed dense breast tissue will get the following notice: Your mammogram … Continue reading
Posted in Breast Cancer, Health Policy, Medical Science Tagged breast cancer screening, California Legislature, KQED, mammograms 4 Comments
Has NBCC Lost Its Way?
Has NBCC Lost Its Way? I’m currently reading letters sent to me by community college students in Utah who watched Pink Ribbons, Inc. and have questions about become activists. Many of these students wonder how they might become activists if … Continue reading
Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness People who know me know that I am no fan of either football or celebrity spokespeople for illnesses they have had. In that light, this blog is bound … Continue reading
Posted in ALS, Breast Cancer Tagged als, Betttty Rollin, Betty Ford, Steve Gleason, Team Gleason 14 Comments
One More Time With Feeling: Can We Be Done With Mammography Screening?
October was long over when the New York Times ran an op-ed about mammography screening and over-diagnosis. The op-ed makes a compelling case for ending population-based mammography screening for breast cancer, based on the on the numbers of women who … Continue reading
Posted in Breast Cancer, Health Policy Tagged Komen, mammography screening, overdiagnosis, overtreatment 6 Comments
Sitting Down to Call Out Stand Up To Cancer (SU2C)
I’m a baseball fan. And a San Francisco Giants fan. I watched a lot of baseball in the post-season. (If you’re wondering, Giants won the World Series, sweeping the Detroit Tigers in 4 straight games. But that’s not really the … Continue reading
NBCC — The Promise, the Process and the Problems
I have a reputation as an expert on the breast cancer and breast cancer advocacy organizations, gained during my 15 years as the (now former) Executive Director of Breast Cancer Action. Since it’s once again October — Breast Cancer Industry … Continue reading
Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
If you like this blog, pass it on to your friends. Let’s keep the conversation going. Maybe you were wondering what I would have to say about the Chick-fil-A. It’s a good story, but not the subject of this blog. … Continue reading
Susan Love: Time to Think Before You Pink
If you like this blog, send to your friends. Let’s keep the conversation going. There are many heroes and heroines in the world of breast cancer. You even know some of their names. One of the best-known is Dr. Susan … Continue reading
Odds and Ends in the Pink Ribbons Wars
If you like this blog, send it to some of your friend. Let’s keep the conversation going. The Language of Cancer You know doubt have noticed that the language of cancer is drawn largely from a bellicose framework. Women with … Continue reading
Posted in Breast Cancer Tagged armamentarium, Breast Cancer Action, Inc, Komen, Leslie Ann, major league baseball, Nancy Brinker, NFL, pink ribbons, war on canncer 5 Comments
What Ever Happened to Previews of Coming Attractions in Health?
If you like this blog, send it to your friends. Let’s keep the conversation going! Anybody who knows about ALS knows where those of us with the disease end up. But there are steps along the way that can be … Continue reading
Posted in ALS, Breast Cancer, Illness, Medical Science Tagged breast cancer risk, bulbar onset, duty to warn, edema, mastectomy, voice 5 Comments