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Recent Posts
- In memory of Blandina Khondowe
- Barbara Brenner Breast Cancer Activist Scholarship
- Remembering Barbara
- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
Ways to Look at Illness
Category Archives: Breast Cancer
Pink Ribbons and Lou Gehrig: Time to Bury Useless Symbols
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! People who have known me a while know that I’m no fan of pink ribbons … Continue reading
Health Activism: Not for the Faint of Heart
I have been a health activist since 1994. Having spent a long time in the cancer field, it seems that now I am destined to become an ALS activist. I just can’t seem to help myself. Wearing One Hat I … Continue reading
Posted in ALS Treatment, Breast Cancer, Health Policy
Tagged activism, advocate, health activist
16 Comments
How Do You Spell Chutzpah: Komen
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! Yiddish is a very expressive language, a blend of Hebrew and German used by Jews … Continue reading
Fast-Tracking Cancer Drugs: The Back Story and The Future
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! In a previous blog post, I tried to explain the importance of understanding what was … Continue reading
Walk for Your Health, But It Won’t Help Anyone Else’s, Much
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! A Little History on the “Walk for [Disease]” Thing Back in 2000, I wrote a … Continue reading
Posted in Breast Cancer
Tagged American Cancer Society, Avon 3-day Walk, Breast Cancer Action, Komen, Revlon Foundation, Samantha King, Ted Gup
20 Comments
Understanding Health Numbers: Not Easy, but Important
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! The 21st Century seems to be, among other things, the Age of Health. Everybody’s concerned … Continue reading
Posted in Breast Cancer, Medical Science
Tagged absolute benefit, absolute risk, anastrozole, Arimidex, Aromasin, aromastase inhibitor, BCPT-1, blood clots, bone pain, Breast Cancer Prevention Trial 1, cataracts, deep vein thrombosis, endometirial cancer, Evista, exemestane, hot flashes, joint pain, medical statistics, number needed to treat, osteoporosis, prevention, relative benefit, relative risk, risk, risk reduction, side effects, stroke, tamoxifen.raloxifene, vaginal discharge
21 Comments
Mammograms — They call this a new problem???!!!
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! I was going to write this post about clinical trials – since I’m trying to … Continue reading
Posted in Breast Cancer
Tagged breast self exam, diagnostic, interval, Missiles to Mammograms, National Cancer Institute, radiation, screening
9 Comments
There’s that person with . . .
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! I’m “meeting” some wonderful people as I deal with ALS, including folks who have other … Continue reading
Posted in ALS Treatment, Breast Cancer, Illness
Tagged Cancer Sucks, disability, iPad, JayBee, KQED, Neo Kate, Parkinson's Disease, pink ribbons, Speak It, turbans
12 Comments