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Recent Posts
- In memory of Blandina Khondowe
- Barbara Brenner Breast Cancer Activist Scholarship
- Remembering Barbara
- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
Ways to Look at Illness
Author Archives: bbzinger
Let’s Broaden ALS Research to Help Patients
If you like this blog, pass it on to your friends. Let’s keep the conversation going. ALS clinical trials are usually quite narrow. They test one device or drug only, and exclude people who are already participating in another trial. … Continue reading
Posted in ALS, ALS Treatment, Health Policy
Tagged Biogen, Biogen Idec, clinical trials, dex, Dexpramipexole, diaphragm pacer, Scangos
4 Comments
The Supreme Court on Health Care II — The Medicaid Debacle
If you like this blog, pass it on to your friends. Let’s keep the conversation going. As you may recall, my most recent post expressed delight about the outcome of, and considerable skepticism about the motives for, the Supreme Court’s … Continue reading
Posted in Health Policy
Tagged Affordable Care Act, Florida, Justice Alito, Justice Kennedy, Justice Roberts, Justice Scalia, Justice Thomas, Medicaid, Supreme Court, Texas
3 Comments
Wonders Never Cease — The Supreme Court’s Health Care Decision
If you like this post, send it to your friends. Let’s keep the conversation going. Since everybody and their cousin is commenting on the Supreme Court’s decision on the Affordable Care Act, I thought I would offer my two cents, … Continue reading
Previews in Health Redux
If you like this blog, pass it on to your friends. Let’s keep the conversation going. Regular readers of this blog will have read my post a while ago called “Whatever Happened to Preview of Coming Attractions in Health.” I … Continue reading
Posted in ALS, ALS Treatment, Illness
Tagged als, ALS Association, ALS Society of Canada, Facebook, Forbes Norris Center, motor neuron disease
3 Comments
If you want to sign a letter calling on Nancy Brinker to resign
that was written by a former New York Komen Affiliate Board Member, email me at barbara@barbarabrenner.net, and I’ll send it to you. Note that the letter says things I wouldn’t have written, but I signed because I believe Brinker has … Continue reading
Posted in Uncategorized
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Susan Love: Time to Think Before You Pink
If you like this blog, send to your friends. Let’s keep the conversation going. There are many heroes and heroines in the world of breast cancer. You even know some of their names. One of the best-known is Dr. Susan … Continue reading
Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
Apologies to readers who are not California voters. I need to talk briefly about Prop 29, the initiative on the June 5, 2012 California ballot. It’s a proposal to raise the state’s cigarette tax by $1.00 a pack to fund … Continue reading
Odds and Ends in the Pink Ribbons Wars
If you like this blog, send it to some of your friend. Let’s keep the conversation going. The Language of Cancer You know doubt have noticed that the language of cancer is drawn largely from a bellicose framework. Women with … Continue reading
Posted in Breast Cancer
Tagged armamentarium, Breast Cancer Action, Inc, Komen, Leslie Ann, major league baseball, Nancy Brinker, NFL, pink ribbons, war on canncer
5 Comments
Changing the Culture of Health Care in a Consumer Society — Not So Easy
If you like this blog, pass it on to your friends. Let’s keep the conversation going. On April 4, 2012 there was a lot of excitement in the press about the fact that nine different boards of medical specialists are … Continue reading