- Remembering Barbara
- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
- Accessibility is In The Eye of the Beholder
- Pink Ribbons and Lou Gehrig: Time to Bury Useless Symbols
Ways to Look at Illness
Category Archives: Health Policy
If you like this blog, pass it on to your friends. Let’s keep the conversation going. ALS clinical trials are usually quite narrow. They test one device or drug only, and exclude people who are already participating in another trial. … Continue reading
If you like this blog, pass it on to your friends. Let’s keep the conversation going. As you may recall, my most recent post expressed delight about the outcome of, and considerable skepticism about the motives for, the Supreme Court’s … Continue reading
If you like this post, send it to your friends. Let’s keep the conversation going. Since everybody and their cousin is commenting on the Supreme Court’s decision on the Affordable Care Act, I thought I would offer my two cents, … Continue reading
Apologies to readers who are not California voters. I need to talk briefly about Prop 29, the initiative on the June 5, 2012 California ballot. It’s a proposal to raise the state’s cigarette tax by $1.00 a pack to fund … Continue reading
If you like this blog, pass it on to your friends. Let’s keep the conversation going. On April 4, 2012 there was a lot of excitement in the press about the fact that nine different boards of medical specialists are … Continue reading
If you like this blog, send it to 3 friends. Let’s keep the conversation going. ALS is in the news again. This time there’s a lot of hoopla about a trial involving stem cells. Before we all get too excited, … Continue reading
If you like this blog, send it to your friends. Let’s keep the conversation going! In the past week there have been no fewer than 3 stories about genetic research and the promise of personalized medicine. One was a cautionary … Continue reading
If you like this blog, pass it on to your friends. Let’s keep the conversation going. In September of last year I wrote a blog on disability access, based on my experiences then traveling in an increasingly disabled condition. Five … Continue reading
If you like this blog, pass it on to your friends. Let’s keep the conversation going. So much has happened with the Komen/Planned Parenthood debacle that it’s hard for me to let go of the topic. It seems the only … Continue reading