- Remembering Barbara
- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
- Accessibility is In The Eye of the Beholder
- Pink Ribbons and Lou Gehrig: Time to Bury Useless Symbols
Ways to Look at Illness
Category Archives: Medical Science
The Legislature and Breast Cancer: Not a Good Match According to California law, starting on April 1, 2013 (I note that that was April Fool’s Day), women whose mammograms revealed dense breast tissue will get the following notice: Your mammogram … Continue reading
I’m a baseball fan. And a San Francisco Giants fan. I watched a lot of baseball in the post-season. (If you’re wondering, Giants won the World Series, sweeping the Detroit Tigers in 4 straight games. But that’s not really the … Continue reading
Like many readers of this blog, I have been exchanging emails with Dr. George Scangos, CEO of Biogen Idec, the company running the clinical trial in which I am a participant. The trial is testing the efficacy of a drug … Continue reading
If you like this blog, send it to your friends. Let’s keep the conversation going! Anybody who knows about ALS knows where those of us with the disease end up. But there are steps along the way that can be … Continue reading
If you like this blog, send it to your friends. Let’s keep the conversation going! In the past week there have been no fewer than 3 stories about genetic research and the promise of personalized medicine. One was a cautionary … Continue reading
If you like this blog, pass it on to your friends. Let’s keep the conversation going. So much has happened with the Komen/Planned Parenthood debacle that it’s hard for me to let go of the topic. It seems the only … Continue reading
If you like this blog, forward it to your friends. Let’s keep the conversation going. Stephen Hawking is famous. He should be. He’s a very influential theoretical astrophysicist. And he’s achieved that fame and influence despite being diagnosed many years … Continue reading
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! It May Look Like News If you have ALS, or know someone who does, you … Continue reading
If you like this blog, send it to 3 (or more) of your friends and encourage them to sign up. Let’s keep the conversation going! In a previous blog post, I tried to explain the importance of understanding what was … Continue reading