- Funeral arrangements and after
- Barbara Brenner 1951-2013
- Thanks and Blessings
- The Legislature and Breast Cancer: Not a Good Match
- Telling the FDA What I Think About ALS Drug Trials
- Has NBCC Lost Its Way?
- Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness
- Approaching Gun Violence as a Public Health Problem: Who Gets to Have a Say?
- Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
- What I Learned as A Volunteer
- One More Time With Feeling: Can We Be Done With Mammography Screening?
- Sitting Down to Call Out Stand Up To Cancer (SU2C)
- NBCC — The Promise, the Process and the Problems
- Who Shall Live and Who Shall Die? — A Yom Kippur Reflection
- Not So Funny Things Happened on the Way to a Diaphragm Pacer: When “Informed” is Not “Consent” and Related Adventures of an ALS Activist
- FDA to ALS Patients: Fuck You
- Fool Me Once, Shame on You. Fool Me Twice . . . : Nothing New at Komen
- Broadening ALS Research to Help Patients III: Make Biogen Idec Walk Its Talk
- Broadening ALS Research to Help Patients — II
- Let’s Broaden ALS Research to Help Patients
- The Supreme Court on Health Care II — The Medicaid Debacle
- Wonders Never Cease — The Supreme Court’s Health Care Decision
- Previews in Health Redux
- If you want to sign a letter calling on Nancy Brinker to resign
- Susan Love: Time to Think Before You Pink
- Tobacco Company Lies Don’t Mean You Should Vote for Prop. 29
- Odds and Ends in the Pink Ribbons Wars
- What Ever Happened to Previews of Coming Attractions in Health?
- Changing the Culture of Health Care in a Consumer Society — Not So Easy
- New ALS Treatment? — Hold Your Applause, Please
- Thoughts on Leadership – Listen Up, Nancy Brinker
- Choices: How I Live with ALS
- Don’t Be Surprised By the Undelivered Promise of Personalized Medicine
- Context is Everything — Framing the Film Pink Ribbons, Inc.
- Further Thoughts on Disability Access
- Komen’s True Colors: Red, not Pink
- Komen Politics: It’s Not Just About Abortion
- Gloves Off: What the Fuck, Komen?
- Pink Ribbons, Inc. is Coming to the US
- You Don’t Have to Talk Like Stephen Hawking
- Tikkun Olam and Corporate Responsibility
- IOM Report on Breast Cancer and The Environment: What Komen’s $1 million Bought
- Social Justice: The Health Connection
- Can We Watch Our Language, Please?
- Nothing Should Have to Be This Hard
- Is October Over Yet?
- Mi’She’Berach: Thoughts on Illness and Blessing
- Accessibility is In The Eye of the Beholder
- Pink Ribbons and Lou Gehrig: Time to Bury Useless Symbols
- Health Activism: Not for the Faint of Heart
Ways to Look at Illness
Author Archives: bbzinger
Funeral services for Barbara will be held on Monday, May 13, at 10:00 AM (sharp!) at Sinai Memorial Chapel, 1501 Divisadero, San Francisco, CA 94115. Burial will be on Tuesday, May 14, at 1 PM at Ocean View Cemetery, Fort … Continue reading
Barbara Brenner passed away peacefully at home on Friday evening. Funeral services will be held in San Francisco, with burial in Fort Bragg. Arrangements are pending and will be posted Sunday on Barbara’s blog, Healthy Barbs (barbarabrenner.net), our Caring Bridge … Continue reading
As my life comes to an end, I want to thank readers of this blog (and our Caring Bridge site for reading all that I have written while I deal with ALS. I’m sure some of what I wrote was … Continue reading
The Legislature and Breast Cancer: Not a Good Match According to California law, starting on April 1, 2013 (I note that that was April Fool’s Day), women whose mammograms revealed dense breast tissue will get the following notice: Your mammogram … Continue reading
As readers of this blog know, I have taken issue with a number of things related to how ALS drug trials are run. Some people at the Food and Drug Administration (FDA) read my blog and the comments to them. … Continue reading
Has NBCC Lost Its Way? I’m currently reading letters sent to me by community college students in Utah who watched Pink Ribbons, Inc. and have questions about become activists. Many of these students wonder how they might become activists if … Continue reading
Steve Gleason: A Rare Celebrity Doing Good by Talking About His Illness People who know me know that I am no fan of either football or celebrity spokespeople for illnesses they have had. In that light, this blog is bound … Continue reading
Disclosures I’m a public health activist. I am also a member of the ACLU, and committed to the 1st Amendment (and all the other Constitutional Amendments, including the 2nd). This blog argues that some organizations should be excluded from participating … Continue reading
Adventures with a Feeding Tube Replacement: A Not So Funny Story, a Cautionary Tale, and A Call To Action
I have had a feeding tube since January 2012 because, thanks to ALS, I can not swallow food or liquids. I have been nourishing myself since I got the tube. The tube is called a PEG tube. I have a … Continue reading